Thursday, August 14, 2008

Not Broken....

I guess we have been in retreat for a few days. Sometimes if I find myself tired or preoccupied I realize that on these days I stick closer to home. At home Muriwai’s limb difference is typical, few people STARE. Few people even see the small smiley face dimple and slash that grins out from the end of her left arm.

By nature I am forgetful and today we ventured out into the confusing tangle of entertainment and absurdity and raw humanity that is our neighborhood. Sticky rice and peanut sauce sounded like a cheap pseudo ethnic experience for my children. We headed out into the noise to get carbed up. While eating Muriwai was stared at by a little girl whose curiosity went unnoticed by her mother for quite a while. Wake up, lady, oh and by the way, maybe you shouldn’t say s**t 18 times in front of small children. When the little girl could not conceal her discovery any longer she ran to her mom. And, of course, I strained to listen…what I heard was a calm and kind explanation about difference and a comparison to Nemo and his little fin. Very cool, and very unexpected. The young mother and I exchanged smiles as she strolled out and I waved to the little girl. Muriwai simply stared back at her and didn’t want to discuss the curiosity afterwards, opting to draw on her placemat and heavily salt my food.

Our son, Cyrus, had picked up on the observation of this little girl when she had been hovering around our table for extended periods of time. And he began recounting some of our playground experiences. “Remember the time that big boy said, ‘She has a broke arm and the other big boy said, ‘No, it is not broke.’” I did remember. If I counted correctly their were about 5 boys and 3 girls and it was a tiring day at the playground. That was the day I told Cyrus that he can speak up for his sister. He can look into their eyes and say, “My sister has a special arm. She was born that way, and she will be able to do anything you can do.”

I could safely say both my kids are not extremely extroverted so I pray they would both learn to have the confidence and courage to speak the truth to unknown kids who were nearly always older.

As we headed home today a small group of kids were on the sidewalk and we said hi to them. As if she had heard our earlier discussion little girl #2 said, “She’s got a broken arm. She’s got a broken arm.” Pointing her finger into the stroller, her little brother was racing up for a look. And Cyrus spoke up and said, “It is not a broken arm it’s a special arm.” I sent the kids back to their dad who hadn’t noticed they had run halfway down the block, I kissed Cyrus for his bravery and asked Muriwai if the words the little girl had said bothered her. She didn’t answer and I’m certain I know what the answer was. She looked at me and gripped her left arm in her right hand so hard it turned red and she said, “Will I get a hand for later?” and I explained to her that we could get a pretend hand that she could take on and off if she wanted one. And she pulled angrily at her arm and said, “But I can’t get it to come out, mama. I can’t get it out!” And that about killed me and then she said, “Is it broken?” and I looked into her stunning brown eyes and I said firmly, “No, it’s not broken, it’s beautiful.” And an enormous smile broke over her face and she hugged me hard and I thanked God for this memorable moment outside of the Family Dollar.

3 comments:

Unknown said...

I can recall about 15 times (off the top of my head) that this same thing has happened to me and my son Mickey (born missing his left hand). It is funny how most kids will think that my son's hand and fingers are broken and will grow back somehow. He has gotten so used to the stares and comments he corrects kids and demands they understand that this is his special hand. Muriwai is very lucky to has such a wonderful big brother to stick up for her and protect her.

Unknown said...

love the story.
reminds me of how often people with disabilities are objects of ?fascination, and not seen as people to engage with. Sad. Have been on the receiving end of this myself. love the apparent realisation and growing acceptance in Muriwai's last statement. Pray she will grow knowing she is fully accepted by God.
have passed your encouraging blog onto to other parents of children with disabilities we work with, knowing it will be an encouragement to them.
thanks for sharing your inner thoughts here, and being real as a Mum.

Dad said...

Thankyou for what you have written. Our hearts go out to you. Muriwai is so presious and a pleasure to be with. We are so looking forward to seeing her in NZ over Christmas. Give her a hug from me.
Love
Dad